Brain Health Registry Archives

Brain health registry GenePool study: A novel approach to online genetics research

Authors: Juliet Fockler, Winnie Kwang, Miriam T Ashford, Derek Flenniken, Joshua Hwang, Diana Truran, R Scott Mackin, Chengshi Jin, Ruth O'Hara, Joachim F Hallmayer, Jerome A Yesavage, Michael W Weiner, Rachel L Nosheny

Journal: Alzheimer's & Dementia

Year Published: 2021

Introduction Remote data collection, including the establishment of online registries, is a novel approach to efficiently identify risk for cognitive decline and Alzheimer’s disease (AD) in older adults, with growing evidence for feasibility and validity. Addition […]

Unsupervised online neuropsychological test performance for individuals with mild cognitive impairment and dementia: Results from the Brain Health Registry

Authors: R Scott Mackin, Philip S Insel, Diana Truran, Shannon Finley, Derek Flenniken, Rachel Nosheny, Aaron Ulbright, Monica Comacho, David Bickford, Brian Harel, Paul Maruff, Michael W Weiner

Journal: Alzheimer's & Dementia

Year Published: 2018

Introduction The purpose of this study is to compare online neuropsychological test performance of older adults across self-reported diagnoses of being cognitively normal, mild cognitive impairment, and dementia due to Alzheimer’s disease and to determine the […]

Online study partner-reported cognitive decline in the Brain Health Registry

Authors: Rachel L. Nosheny, Monica R. Camacho, Philip S. Insel, Derek Flenniken, Juliet Fockler, Diana Truran, Shannon Finley, Aaron Ulbricht, Paul Maruff, Kristine Yaffe, R. Scott Mackin, Michael W. Weiner, Alzheimer's Disease Neuroimaging Initiative

Journal: Alzheimer's & Dementia

Year Published: 2018

Introduction Methods for efficiently identifying cognitive decline and Alzheimer’s disease (AD) are a critical unmet need. The goal of this work was to validate novel online study partner (SP)-reported outcomes to identify cognitive decline in older […]

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